National Tay-Sachs & Allied Diseases to Honor Dr. Stephen Groft, Champion of Rare Diseases Research at Benefit
The National Tay-Sachs & Allied Diseases Association (NTSAD), the nation’s oldest patient advocacy organization, will honor Stephen Groft, PharmD, at Imagine & Believe, the organization’s annual Boston fundraising event to be held Thursday, November 13, 2014 at the Royal Sonesta Hotel, Cambridge MA. Proceeds from the benefit will fund rare disease research and help provide support for families affected by Tay-Sachs, Canavan disease and other related rare genetic diseases.